#AboutMeLeeds – join the conversation 21-27 Oct 2013

#AboutMeLeeds – join the conversation 21-27 Oct 2013

by | Oct 20, 2013 | #AboutMeLeeds, NHS stuff, social media | 0 comments

How much have you thought about what data you share online? Do you know who has access to it and what they can do with it? What if health and social care organisations could do a better job by sharing the information they have about you with each other? Just imagine if you could update your own health record; opt for the council to text you reminders to put out your bins; download an app which pushes relevant information to you about health, wellbeing and leisure in your city – a sublime vision of the future or one which leaves you cold and indifferent? As part of the Leeds Digital Festival, local NHS organisations and the council, supported by NHS Employers, NHS Confederation and NHS England, will be deliberating with the citizens of Leeds (and beyond) about all of these questions and many more from 21-27 October. We are partnering with Leeds Data Thing to test out a social conversation which will help shape the use of data in our city. To kick start the conversation we will be uploading blog posts every day which will shed light on the topic from a different angle – kindly written for us by people who use local services, council officers,  clinicians, councillors and chief executives. Everyone has a view, an opinion, a fresh perspective – something we hope will engage you, interest you, and spark a conversation. Here are snippets from just a few of the many posts we’ll be sharing: @PositivitySmile uses Twitter as a source of support for their mental health problems and is startlingly frank about their worries...
#AboutMeLeeds – digital as a tool for citizen participation

#AboutMeLeeds – digital as a tool for citizen participation

by | Oct 8, 2013 | #AboutMeLeeds, social media | 1 comment

It strikes me as a little foolhardy to write a blog post on a topic I know precious little about and on one to which I have given very little thought. But on this occasion that’s sort of the point… A couple of weeks ago if you’d attempted to have a conversation with me about data privacy you’d have been pretty disappointed – I confess I had not give it a great deal thought; that was until we decided to do an experiment in online citizen participation during the Leeds Digital Festival, and this emerged as topic about which health and social care organisations really want to have a conversation with the citizens of Leeds. Ok… so health and social care organisations are interested; but the nagging question in the back of my mind was (and is) would the citizens of Leeds be the slightest bit interested? Doesn’t  the argument tend to go ‘if you’ve got nothing to hide then why would you care who knows what about you anyway?’ But the more I’ve pondered, the more I realise that I am quite bothered. I’m bothered about the fact that Facebook use my age and gender data (willingly supplied by me of course) to allow marketers to pop wrinkle cream and diet product ads on my timeline. I’m bothered that a hospital might not properly treat my son’s impressively extreme and rare allergy properly if they can’t access his GP data. I’m bothered that I regularly get convincing illegal texts and emails trying to elicit my bank details. I’m also a little bit bothered (when I give it serious...